HIV Basics

  • According to the CDC, “HIV stands for human immunodeficiency virus. It weakens a person’s immune system by destroying important cells that fight disease and infection. There is currently no effective cure for HIV. But with proper medical care, HIV can be controlled.”

Stigma

PEP

PrEP

 

Hotlines

  • There are national hotlines available to answer questions providers may have in accessing nPEP, as well as any questions on HIV.

Access to Care/Payment

     

Access to HIV Testing

  • There are many places across the state where you can get an HIV test. 

 

HIV/nPEP Information for Advocates

Positive result counseling -

Provider Bias - 

  • We know there are stigmas and biases in the sexual violence field, and accessing medical care is no exception. There may be stigma around asking the survivor if they would like to be tested for HIV. There may be a need to suggest to the SANE that the survivor would like to be tested, or know the option is available.  

Side Effects and Misinformation - 

  • As with any medication, people may experience side effects while taking PEP. The SANE can discuss any concerns around potential side effects. It may be important to note that PEP is generally tolerated well by most people, and side effects may be temporary. Ask the SANE about a prescription to help with nausea, as well as other ways to mitigate other possible side effects.

SANE/Emergency Department (ED) – 

  • It is important to work with the SANE as much as possible to assist with medication payment, medication adherence and follow-up, advocate for the patient to get tested, and assist with access to medication. Be sure to ask about payment assistance programs and if they are familiar with the forms and the processes. Check to see if the hospitals in your area give out a “starter pack” for PEP, as some locations may give out a few days worth, giving the survivor time to access a pharmacy for the rest of the prescription. It is best to connect with your local SANE and/or ED to inquire about their protocol for HIV and PEP for forensic exams before you are called in to work with a survivor. 

 

Medication adherence -

  • Medication adherence is important when taking PEP as the medication is only effective at preventing HIV if the survivor takes the full 28 day course. Your role as an advocate can be helpful with this. We need to appreciate the effect that trauma has on memory and mental health. If your agency has a policy of checking in with survivors, add medication adherence to that check-in, along with helpful reminders. 

 

Resources and Further Learning -